Tuesday, November 30, 2010
My Adventure being a Kidney Donor...........Just wanted to post where is all began Again..:))
Saturday, November 13, 2010
Interview on You Tube at heaston-together we can.wmv Check it out♥♥
If you go to YOU TUBE and search heaston-together we can.wmv You will see the interview of Together we can Save Lives By Zander Heaston.... A week before Our Surgery Zander a 3rd grader at Kimberly Elmentary Interviewed me on my Lunch hour at Work..........He did it for his school project but It is Great..........Thank YOU Zander..............and hope you ALL enjoy....xxoxo patty♥
Saturday, October 30, 2010
Today............Oct 30th 2010........12 days after Surgery
Today I feel like ME..I feel Great NO PAIN, Slept Good and Ready to RELAX again....I am not going to take no chances........I will NOT over do IT.... Just because I FEEL GOOD na-na-na-na i knew that i would now na-na-na-na-na SO GOOD doo-doo So Good SO GOOD......sorry I felt like A Song... So this Week has been a real challenge with my Kidney Donation, a little bump in the road to my recovery.... So here is our story....I will start today and go backwards to Our Surgery Day for Juliana and Me. A week from today at MIDNIGHT so Sunday morning Oct 24th I woke up SHiVering Real bad ShAKINg All over.......I woke up Mario and I began to throw up non stop Mario took my temp it was 99. We Called the emergency At Loma Linda and the Dr. suggested Tea.......NOPE not good.....Temp is now 101......Called Dr. back and He said to come to the Emergency .....When we got there my temp was 103...They did a CTscan and I was admitted....WOW......LOMA LINDA is on it..........My blood work showed I had an infection 26 white cell count is extremely high.........Mario was shocked and I was VERY sick ...Infection in my bowel....How and why ( I am pretty darn sure GOD being in Charge wanted to slow me down) My bowels were moving but very little and The Drs. Got right to work I was packed in Ice for my temp (worst night of my life) I was freezing and then put in Ice all around me and NO Blankey WHAT!!!!.......my fever went down for like a second and than shot up again and They Again took my Blanket.......Leo came to see me on Monday and gave me my blanket Back heheheheh........He was really worried but I told him I had the best urology team ever Dr. Baldwin was in Hawaii at a conference but had his whole team and Dr. Barker working on me around the clock.....I was givin and enema (sorry not good but things really started to MOVE) you get the picture ........I mean Really move ...sorry.... I was so sick Monday night my Nurse Joy Beautiful JOY.......told me I had done such a brave thing and God would take care of me.....I began to cry and than so did she....I told her I know I did a good thing but Why am I sick Now I Don't feel good I feel REALLY Really Sick .......she held me and we Began to pray.......we cried and prayed ...Immediately I started to feel better....than she gave me a shot that helped me sleep......I had 4 bags of stuff going into my body and a Catheter ...but I slept..........When I woke up Tuesday it AGAIN was a MIRACLE.....no temp they removed the catheter and GOD IS GOOD.....Alleluja..........My Husband was by my side everyday and He went beyond Sickness and In Health .....He gave me a sponge bath when I had an Accident at one of my tests at the Lab.....the girls (young techs) had no clue on how to clean me and I was crying But MY HUSBAND took me in the restroom and I love HIM SOOOOOO MUCH.........(of course he made me swear never to tell so shhhhhh)lol........Tuesday evening Leo Visited again and I could see it in his Eyes......I was back ....He gave me a Kiss and than Mario too.........It made me Laugh........we are Forever Family .....Ellen had called me everyday I talked to Juliana and She is doing Great......Thank you God and I know he was slowing me down and I took one for the team (Team JULIANA AND PATTY ) :))))).......Weds night I was back in my own BED YAAAAA.................Now let's move to Surgery Day, the 18th of Oct...........5am Mario and I arrive, than Juliana and Ellen .........They take us up to pre-op, but only I stay Juliana has more testing and has to pretty much wait till my Surgery is over for hers to begin.........As I am waiting in the room just outside my Surgery place I begin to reminisce on how it began and I tell God I LOVE HIM and Thank YOU...........Suddenly I feel a Warmth feeling from my head slowing moving to my Heart and Down to my toes........I tell the Nurse next to me I think I was just Filled with the Holy Spirit and I explain what I just felt.....He put his hands on me and Said "Yes you are Blessed by God" and he held his hands on me and smiled.........I wanted to Cry but didn't want others to get the Idea that I was scared Because it was Just the Opposite.................When I woke up I was being taken to my Room..........I Saw My husband Mario, Daria my Sister in Law....Kids Eric, Katie, later Alex and Michelle, Brother Jimmy and Dar, Sister Kathy and Don, Friends and co workers Marco and Ana, Betty and Yesnia, Debbie and Jessie, Barbara and Karrie, .....I was up walking immediately ........got a little shaky and pale the Nurse thought I was going to pass out but NO ..........I was tough............Party Patty is BACK.......I was released the Next day The STAR patient!!!!!!Amazing they said................I got to See Juliana, She's Doing GREAT.........Leo and Ellen, Nathan and Melissa, Brought me some presents. A Kidney stuffed furry and cute from I heart guts .com.........From Juliana Ahhahh she gave me a Kidney I will cherish Forever............I love her.....Melissa and Nathan (Juliana"s Brother) gave me a key chain ninja for protection and aTee shirt with I donation Organ and attachment - happy faces of all kinds I LOVE it....and a Coffee cup from Juliana painted by her with lil Kidneys on it and written Thanks for the Kidney.....Ellen gave me one of her Art pieces a BEAUTIFUL Gold and Maroon Gourd....with a beautiful poem engraved..."Dance as though no one is watching you. Love as though you have never been hurt before. Sing as though no one can hear you. Live as though heaven is on earth."(sousa) WoW I will cherish this for Always.........Thank Schouest Family for making my Family feel so Welcome and Blessed!!!!!!! So on to my going home in 24 hrs after surgery ...........I began to Entertain cuz that's what I do....My store Albertsons in Redlands sets up meals to bring me For a Month and My hair dresser Pam at Allure besides giving me a free cut and Color and Stacia gives me a free Facial and Luanne gives me a Pedicure Wow Robin brings food too and her Church Thank You ......for 4 days I over do it Big Time ..........I get weak and Tired and eventually right back in the Hospital for Days..........Lesson Learned ........Before Surgery on Sunday the 17th of Oct. as if Ellen hadn't done enough she wanted to give us a Two Hour Massage...me and Juliana.....And Cheryl was a Giver and a Miraculous Healer...........2 hr massage...........I love You Cheryl.......xooxo That's my Journey to date a little backwards but if you know me Well.........then you Understand...........♥♥♥♥♥ :))))
Friday, October 8, 2010
So many are on the Kidney Transplant list..............Some up to 11yrs......This is Heathers story
Today in my Union paper is a story of Heather Gutierrez 16 yrs old with a rare Kidney Disease Nephrothic syndrome , Kidneys have shut down and she has gone from a size 12 to 28 due to kidney failure ....she has already been through soooo much..she is going through the process to be put on a kidney donor list.....So much red tape but Her mom Leilani Gutierrez is Asking fellow members or Any one who wants to get tested Call ....... the First step would be the UFCW office 1167 in Bloomington as The Desert Edge Union Paper ran the story.........If you are interested call 909-877-5000 and press #4 and ask who to contact to get tested.................I know Loma Linda Transplant Institute would be one place to start if you want to get more Info about being a Kidney Donor ~909-558-3636..............♥♥ Saving A LIFE is The Act of Love in the Highest.............................:)))
Thursday, October 7, 2010
Kidney Donation- Saving a Life or two: My Adventure being a Kidney Donor...........
Kidney Donation- Saving a Life or two: My Adventure being a Kidney Donor...........: "Today We have a Surgery date......Oct 18th 2010........I am blessed to be able to give my Kidney to Juliana. And this is how it all began...."
Wednesday, October 6, 2010
Looking into my past and Seeing my Future............. One of the BEST Parts of my Life So Far....Thank YOU Juliana
Today I was reminiscing of My Life so Far.....I have Had Many Things that have Shaped me to who I am TODAY......My Birth April 1956... Baby of 5 Two Sisters Kathy (oldest)& Colleen (middle)& two Brothers Jimmy (2nd oldest) & Michael (Just before me) My parents Jim and Kay.............Parents Divorced when I was Two.............lived in 28 places before the age of 18..........Had a step mother Vonnie who Died when I was twelve........Parents remarried when I was 13...........Dad belongs to A.A. and is sober 7years at this time..................appendix burst for 3 days before going to the Hospital at age 12... just before Vonnie's Death, I was in the hospital 30days gangrene sets in and I have 3 surgeries ..........Something happens at age 13 that I have to come to terms with 20yrs later due to it being in a dark corner of my mind (won't share the details) and it is in my past where it will stay......Dealt with it and moved on..............♥.......At age 16 moved in with my Sister Colleen and helped her.....she is divorced and I care for my niece Debbie and nephew Danny( 6&7)........I am a Sophomore and grow up Fast ..........at 18 Move back home .......Dad has a heart attack and He retires. Parents Travel across the USA and I move in with my Sister Kathy and my Niece Kelly and Nephew Ricky (teenagers) Meet Mario at 22yrs old Move in and 4 yrs later marry..........June 1982......First born Eric ...Jan 1984.....1985 5th stage Dysplasia told no more children I am sterile...........2nd born Alex Jun 1987 bed rest only to get up to use bathroom for 4months....(what do the Drs know Or How powerful is God) lol......12 months 9 days later I have my baby Girl Katie.....July 1988....March 1991 Alex mauled by a Dog 150 stitches on his face.........As of today Alex has had more than 200 stitches and hospitalized 3 times..........wheewww....Nov 10th 1997 I am with my family as my Daddy takes his last breath and the Angels take him .... You can see the Joy in his eyes...... At the time of his Death he was sober and on A.A. 35yrs........2001 June Eric graduates and goes off to Cal Poly San Luis Obisbo..Nov. 12, 2001 my Mother takes her Last breath and I see her and my Dad Dancing in Heaven.........I still smell her perfume every so often....2007 Katie Graduates High School and Eric graduates College 2 days apart.....whew.........Alex has struggles but I Never give up on Him............Today he is clean of the Worst Drug ever HEROIN.......I am very Proud of him and I know God won't forget all the plans he's made for him.....He's not finished with him Yet.........♥♥♥ NOW TODAY I AM PREPARING TO GIVE A KIDNEY AND HOW MANY CAN SAY THEY SAVED A LIFE..............But This is Right up there with the Birth of my Children ...........Thank You Juliana for being apart of one of The best things in my LIFE SO FAR♥♥♥♥♥♥♥♥♥♥♥♥♥
Saturday, October 2, 2010
What's ahead...........A new Beginning
Today I am looking at Juliana's and my Surgery as a New Beginning. For me It has brought me to appreciate All the Dr.s and Nurse's we have in the World. It is amazing That one person can Give an important Organ Like a Kidney to Another Human being and the body adjusts to one kidney and it becomes bigger and better than two little Kidneys, It becomes a Super Kidney~......... I hope I can really touch someone with my experience. And if that person has the desire to be a Donor they will become one. I can't explain the feeling, but I can tell you it is a Joyous. I want to get more people interested in Kidney Donation....Thousands and Thousands of people die each year because they were on a Kidney Transplant List and and for some reason the right person didn't come forward to HELP....Most people are on the list up to 11 years before they hopefully get a match....Surgeons have come along way on Kidney transplants and No longer is it invasive with a lot of cutting and entering through the back. It is now laparoscopic usually on your left side with 3 small incisions and recovery is pretty fast 2 to 6 weeks........Wow.....Absolutly AMAZING..........After my Surgery I will give you a day by day report on how I feel..............My next appointment is my Pre-op on Tuesday Oct. 12..........I got a little freaked out when Juliana told me she had to give 24 vials of blood for her pre-op appointment.........OMGosh will I too..........It's okay bring it on and than Give me lots of orange juice...heheheheh.........Goodbye till Tomorrow........:))
Thursday, September 30, 2010
Today I am Thanking God for giving Me the gift To GIVE....................
Today I really felt a warm and fuzzy feeling inside me. I shared my story with some co-workers today and after telling Jeff and Tracy about how this all came about............I got a big Chill and tingling feeling.........I know that God really exist and has a plan for each and everyone of us. So when I had the Big need inside of me to donate a Kidney so strong it was all I could think of and right then, My feeling was a reality and That's when God put Leo in my path and the rest was an exciting History .........From that moment I knew Juliana and I were in Gods Hands and He was in Control ..........At that time I had NO fear I had only Excitement...........But at one point after a lot of the testing I had a scared feeling and started thinking about how was my body going to change on Everyday functions (you know like Peeing........LOL)that's the kind of things I think about...LOL...after my Bladder prolapse surgery........LOL...Anyways what happened next was just short of a Miracle for Me............I was at work telling my Co-worker and Friend John about feeling scared and He agreed I should really make sure I am ready for this..............Well I had to leave work early as I had an appointment to get my TB test checked and Louisa(the RN at the Transplant Institute) told me to call her when I got to the Transplant Institute because they were Closed........So after taking a moment in my Car as I did before every Test to say a little prayer and ask God to Make me Good enough to pass this test For Juliana..........Please Dear Lord I pray that all these Tests will be good and Your Will be Done.......Amen........And I added a little prayer to take away the doubt and fear I was feeling..........Then I called Louisa, she was going to come out and Check the spot of my TB test and I would be on my Way.............But once again God Had a different plan that day.......Louisa asked if I would come in and join a Testimonial of Donors and Recipients.........WOW, I heard a Young husband speak of His donation to his Wife........and He answered all my Questions of fear without me even Asking the Question .......Is that Amazing!!!!!........A friend gave to a friend and she spoke.... A sister gave to her sister and she spoke ..........And Than I had this EXCITING FEELING COME OVER ME AND I HAD TO SHARE MINE AND JULIANA'S STORY..............I spoke of Hector and his untimely death and how I had only met Juliana once to get our blood matched and How her father came into the store on the most Perfect day That it ALL began...............Louisa gave me a Hug and than I gave Her a big Hug back and Started to Cry when I told her How God just put me here with you and the fear I had felt the night before and earlier was Gone............She said It is for sure Gods Plan and I have Had NO FEAR since At ALL........I am so Happy that I am Blessed to Be able to Give My Kidney to a Wonderful Beautiful Girl With Lots of Goals for her Long and exciting LIFE....Because I Know God has a even Bigger Plan for Juliana's LIFE...and I am so Happy I am apart of it ALL........PRAISE GOD and All THE GOOD he does!!!!..............♥♥♥♥♥♥
Wednesday, September 29, 2010
Kidney Donor Testing................The best Physical EVER......
So The first test I had was blood work to get Mine and Juliana's blood crossed Match............Lots of vials of Blood........Than when it came back Match I had to do like 10 vials of blood ( for sugar, thyroid. liver function, and so on) than over to Nuclear Medicine to be shot up with some really strong smelly stuff...LOL....like embalming fluid lol just Kidding.......Than in a special chair to sit perfectly still for 45 min to check my Kidneys.......the BEING still was the hardest for this hyper girl........LOL.......Next Test The most thorough Pap test I have EVER had......no cancer Anywhere yaaaaaaa.......Next CT scan again shot up with some weird stuff and put into a machine and feels real warm through my Whole body ..........almost like your peeing........LOL the tech told me some people freak out but You know me I like it.........Heeheeeheee........Than Cardio stress test OMG.......I ran 8 min on a treadmill Piece of Cake, I thought than it elevates and faster than FAster Than FASTER AND FFFFAAAASSSSTTTTEEERRRRRR......they pretty much throw you on the bed and ask you to Hold Your breath WHAT ARE YOU KIDDING ME........LOL LOL LOL ......But I passed with flying colors...Thank YOU Jesus............I had a Mammogram than Colonoscopy .....that was not as hard as i thought the stuff you drink was the hardest.......and ALL my moles over my whole Body checked..........and more blood......All Over about 3 months....And I would do it all over again...........♥patty
Tuesday, September 28, 2010
My Kidney Adventure Continues
Today my husband Mario and I were watching a program on T.V. It was the Terry Fox's Story and his Marathon of Hope as he ran Across Canada in 1980. He was an amputee and had battled Cancer. He was an inspiration to those fighting Cancer and wanted to raise money for cancer research. Some called him A HERO and in one of his speeches as he was running cross Country He Said..... I am not the Hero the heroes are the one on Chemo and fight to Live..........WoW.......I have been uncomfortable when people look at me as something Special and Now I know what to say.............It's not me that is special it is Juliana and all those on Dialysis......Those are the Hero's Everyone fighting to stay Alive and going through all the hours and Indore all the pain to Stay Alive.........Juliana said to me one day when I asked her about her sickness.........she said "I don't think of it as being Sick" it's just a bump in the road for her..........She is the Hero in my life and Juliana is doing More for me Than I am for her ......So please don't give me The Credit give it To Juliana and All those that FIGHT TO STAY ALIVE.........:)))
Monday, September 27, 2010
My Adventure being a Kidney Donor...........
Today We have a Surgery date......Oct 18th 2010........I am blessed to be able to give my Kidney to Juliana. And this is how it all began........Oct. 2007 I had an Appointment. at Cedars Sinai Hospital to be Tested as a Kidney Donor for my Brother -in -Law Hector. He had been on the transplant list already so long due to no family donors because of the chance of kidney disease, Diabetes and High blood pressure in the family. The night before going to Cedar Sinai I had pelvic prolapse and needed Surgery. I was told it would take a year to heal enough to be considered. So again the search for a donor for Hector. His health was not good. He had had a small heart attack and dialysis was getting so hard for him trying to be a Good elementary Teacher that he was and fighting to keep his Job. The Principal and School Board really Put Hector under a lot of stress and wanted him to quit due to his illness but he loved Teaching soooo much. At the end of 2008 Hector's daughter Anna, after giving birth to her little girl Madison,Was a MATCH for her Dad. Things were looking up. Anna got Married May 2009 and when returning from her Honeymoon she and Hector would go in to do the transplant. But God had other plans for Hector's very tired body and two days after Anna's wedding and the celebration (we see now as) Of Hector's Life.......he had a Heart Attack and Passed. :''((........I began researching Kidney transplants and how many people are on the list for like 11 years or long before getting a Kidney. I really felt like I needed to donate my Kidney in honor of Hector and Save a LIFE......After talking with my husband Mario and getting his blessing and understanding of why I needed to do this..... I wamted to find out how to go about it????.....It just so happened that I work at Albertsons Grocery Chain in the Meat Dept and I had a Customer who I really never knew his name, but he came in every Sunday and on this one Sunday around February or March 2010 I saw a sadness in him..........So I asked his name and he said "Leo".......I came around the counter and asked him if everything was all right and he told me His Daughter was home from College due to Illness and not sure what was wrong. I told him I would keep her in my prayers and what is her name...."Juliana" he said. A few Sundays go by and Leo comes in and I asked How's Juliana and He said she is having Kidney problems and is going to go through some extensive testing to get her on a Kidney List!!!!! O' MY GODNESS........."I am your Girl"!! "What" Leo said Looking at me as if I was Kooky (yes but any ways) I told him that I had been planning on donating a Kidney and He said he really appreciated that but Family and friends would be tested and said he was Amazed I would even Consider such a thing. So I told him the story of Hector.........."WOW" he said..........So more Sundays go by and Leo came in with a packet in Hand and proceeded to give it to me But made me promise to talk to my Family first. Others had been afraid or had health issues And her Brothers was still young and was advised to have Children first.........So here I am and it was Easter Sunday I gathered my Children and Husband and we went through the packet I did more research ........found this wonderful web site Kidney Chronicles ......Told my family that whether you have 1 or 2 kidneys if you get sick with kidney disease it will usually affect both....My one Kidney will get bigger and become a SUPER Kidney.......and I Felt really good about this ............So with my family's Blessing I called Juliana and she gave me the Number to Call at Loma Linda University Hospital and made an Appointment to get our Blood cross matched...........A couple days later YEAH...We are a match!!!!.........So through the next 4 months May June July August I get poked probed and the BEST physical anyone could ever have. My cholesterol was a little high, had a little over average sugar in my blood and So I seen a dietician Teresa and went on a diet with turkey and chicken and fish NO RED MEAT and Lots of fruits and veggies.........Water Water Water......Oh My the water was amazing , I had no more pain in my knee's and my cholesterol drop and I lost 15 lbs and Sugar levels great.......yeah. I told Juliana she was Saving my life ......all my changes will make me healthier and I will live a Long long healthy Life.......I have seen Allison the Social Worker, Dr. Zack my Advocate, Dr Baldwin my Surgeon and next My anesthesiologist on Oct 12th. Whats really funny is how All the Social workers and Avocates try to talk you out of it, but I think they want to make sure you are really Doing it for the right reason.....I will keep posting as It all comes about , I want to help someone in need of a Kidney To Know get the word out. Don't be afraid to tell people you need a donor. And the one you tell might Have it in them to Give. And to anyone who feels the Love and need to Give and may consider being a LIVING DONOR ...I am going to give you all the Details of how I feel after my surgery and I will go into more detail with each blog of my testing I went through..........So until next blog..... God Bless Patty
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