Saturday, October 30, 2010
Today............Oct 30th 2010........12 days after Surgery
Today I feel like ME..I feel Great NO PAIN, Slept Good and Ready to RELAX again....I am not going to take no chances........I will NOT over do IT.... Just because I FEEL GOOD na-na-na-na i knew that i would now na-na-na-na-na SO GOOD doo-doo So Good SO GOOD......sorry I felt like A Song... So this Week has been a real challenge with my Kidney Donation, a little bump in the road to my recovery.... So here is our story....I will start today and go backwards to Our Surgery Day for Juliana and Me. A week from today at MIDNIGHT so Sunday morning Oct 24th I woke up SHiVering Real bad ShAKINg All over.......I woke up Mario and I began to throw up non stop Mario took my temp it was 99. We Called the emergency At Loma Linda and the Dr. suggested Tea.......NOPE not good.....Temp is now 101......Called Dr. back and He said to come to the Emergency .....When we got there my temp was 103...They did a CTscan and I was admitted....WOW......LOMA LINDA is on it..........My blood work showed I had an infection 26 white cell count is extremely high.........Mario was shocked and I was VERY sick ...Infection in my bowel....How and why ( I am pretty darn sure GOD being in Charge wanted to slow me down) My bowels were moving but very little and The Drs. Got right to work I was packed in Ice for my temp (worst night of my life) I was freezing and then put in Ice all around me and NO Blankey WHAT!!!!.......my fever went down for like a second and than shot up again and They Again took my Blanket.......Leo came to see me on Monday and gave me my blanket Back heheheheh........He was really worried but I told him I had the best urology team ever Dr. Baldwin was in Hawaii at a conference but had his whole team and Dr. Barker working on me around the clock.....I was givin and enema (sorry not good but things really started to MOVE) you get the picture ........I mean Really move ...sorry.... I was so sick Monday night my Nurse Joy Beautiful JOY.......told me I had done such a brave thing and God would take care of me.....I began to cry and than so did she....I told her I know I did a good thing but Why am I sick Now I Don't feel good I feel REALLY Really Sick .......she held me and we Began to pray.......we cried and prayed ...Immediately I started to feel better....than she gave me a shot that helped me sleep......I had 4 bags of stuff going into my body and a Catheter ...but I slept..........When I woke up Tuesday it AGAIN was a MIRACLE.....no temp they removed the catheter and GOD IS GOOD.....Alleluja..........My Husband was by my side everyday and He went beyond Sickness and In Health .....He gave me a sponge bath when I had an Accident at one of my tests at the Lab.....the girls (young techs) had no clue on how to clean me and I was crying But MY HUSBAND took me in the restroom and I love HIM SOOOOOO MUCH.........(of course he made me swear never to tell so shhhhhh)lol........Tuesday evening Leo Visited again and I could see it in his Eyes......I was back ....He gave me a Kiss and than Mario too.........It made me Laugh........we are Forever Family .....Ellen had called me everyday I talked to Juliana and She is doing Great......Thank you God and I know he was slowing me down and I took one for the team (Team JULIANA AND PATTY ) :))))).......Weds night I was back in my own BED YAAAAA.................Now let's move to Surgery Day, the 18th of Oct...........5am Mario and I arrive, than Juliana and Ellen .........They take us up to pre-op, but only I stay Juliana has more testing and has to pretty much wait till my Surgery is over for hers to begin.........As I am waiting in the room just outside my Surgery place I begin to reminisce on how it began and I tell God I LOVE HIM and Thank YOU...........Suddenly I feel a Warmth feeling from my head slowing moving to my Heart and Down to my toes........I tell the Nurse next to me I think I was just Filled with the Holy Spirit and I explain what I just felt.....He put his hands on me and Said "Yes you are Blessed by God" and he held his hands on me and smiled.........I wanted to Cry but didn't want others to get the Idea that I was scared Because it was Just the Opposite.................When I woke up I was being taken to my Room..........I Saw My husband Mario, Daria my Sister in Law....Kids Eric, Katie, later Alex and Michelle, Brother Jimmy and Dar, Sister Kathy and Don, Friends and co workers Marco and Ana, Betty and Yesnia, Debbie and Jessie, Barbara and Karrie, .....I was up walking immediately ........got a little shaky and pale the Nurse thought I was going to pass out but NO ..........I was tough............Party Patty is BACK.......I was released the Next day The STAR patient!!!!!!Amazing they said................I got to See Juliana, She's Doing GREAT.........Leo and Ellen, Nathan and Melissa, Brought me some presents. A Kidney stuffed furry and cute from I heart guts .com.........From Juliana Ahhahh she gave me a Kidney I will cherish Forever............I love her.....Melissa and Nathan (Juliana"s Brother) gave me a key chain ninja for protection and aTee shirt with I donation Organ and attachment - happy faces of all kinds I LOVE it....and a Coffee cup from Juliana painted by her with lil Kidneys on it and written Thanks for the Kidney.....Ellen gave me one of her Art pieces a BEAUTIFUL Gold and Maroon Gourd....with a beautiful poem engraved..."Dance as though no one is watching you. Love as though you have never been hurt before. Sing as though no one can hear you. Live as though heaven is on earth."(sousa) WoW I will cherish this for Always.........Thank Schouest Family for making my Family feel so Welcome and Blessed!!!!!!! So on to my going home in 24 hrs after surgery ...........I began to Entertain cuz that's what I do....My store Albertsons in Redlands sets up meals to bring me For a Month and My hair dresser Pam at Allure besides giving me a free cut and Color and Stacia gives me a free Facial and Luanne gives me a Pedicure Wow Robin brings food too and her Church Thank You ......for 4 days I over do it Big Time ..........I get weak and Tired and eventually right back in the Hospital for Days..........Lesson Learned ........Before Surgery on Sunday the 17th of Oct. as if Ellen hadn't done enough she wanted to give us a Two Hour Massage...me and Juliana.....And Cheryl was a Giver and a Miraculous Healer...........2 hr massage...........I love You Cheryl.......xooxo That's my Journey to date a little backwards but if you know me Well.........then you Understand...........♥♥♥♥♥ :))))
Friday, October 8, 2010
So many are on the Kidney Transplant list..............Some up to 11yrs......This is Heathers story
Today in my Union paper is a story of Heather Gutierrez 16 yrs old with a rare Kidney Disease Nephrothic syndrome , Kidneys have shut down and she has gone from a size 12 to 28 due to kidney failure ....she has already been through soooo much..she is going through the process to be put on a kidney donor list.....So much red tape but Her mom Leilani Gutierrez is Asking fellow members or Any one who wants to get tested Call ....... the First step would be the UFCW office 1167 in Bloomington as The Desert Edge Union Paper ran the story.........If you are interested call 909-877-5000 and press #4 and ask who to contact to get tested.................I know Loma Linda Transplant Institute would be one place to start if you want to get more Info about being a Kidney Donor ~909-558-3636..............♥♥ Saving A LIFE is The Act of Love in the Highest.............................:)))
Thursday, October 7, 2010
Kidney Donation- Saving a Life or two: My Adventure being a Kidney Donor...........
Kidney Donation- Saving a Life or two: My Adventure being a Kidney Donor...........: "Today We have a Surgery date......Oct 18th 2010........I am blessed to be able to give my Kidney to Juliana. And this is how it all began...."
Wednesday, October 6, 2010
Looking into my past and Seeing my Future............. One of the BEST Parts of my Life So Far....Thank YOU Juliana
Today I was reminiscing of My Life so Far.....I have Had Many Things that have Shaped me to who I am TODAY......My Birth April 1956... Baby of 5 Two Sisters Kathy (oldest)& Colleen (middle)& two Brothers Jimmy (2nd oldest) & Michael (Just before me) My parents Jim and Kay.............Parents Divorced when I was Two.............lived in 28 places before the age of 18..........Had a step mother Vonnie who Died when I was twelve........Parents remarried when I was 13...........Dad belongs to A.A. and is sober 7years at this time..................appendix burst for 3 days before going to the Hospital at age 12... just before Vonnie's Death, I was in the hospital 30days gangrene sets in and I have 3 surgeries ..........Something happens at age 13 that I have to come to terms with 20yrs later due to it being in a dark corner of my mind (won't share the details) and it is in my past where it will stay......Dealt with it and moved on..............♥.......At age 16 moved in with my Sister Colleen and helped her.....she is divorced and I care for my niece Debbie and nephew Danny( 6&7)........I am a Sophomore and grow up Fast ..........at 18 Move back home .......Dad has a heart attack and He retires. Parents Travel across the USA and I move in with my Sister Kathy and my Niece Kelly and Nephew Ricky (teenagers) Meet Mario at 22yrs old Move in and 4 yrs later marry..........June 1982......First born Eric ...Jan 1984.....1985 5th stage Dysplasia told no more children I am sterile...........2nd born Alex Jun 1987 bed rest only to get up to use bathroom for 4months....(what do the Drs know Or How powerful is God) lol......12 months 9 days later I have my baby Girl Katie.....July 1988....March 1991 Alex mauled by a Dog 150 stitches on his face.........As of today Alex has had more than 200 stitches and hospitalized 3 times..........wheewww....Nov 10th 1997 I am with my family as my Daddy takes his last breath and the Angels take him .... You can see the Joy in his eyes...... At the time of his Death he was sober and on A.A. 35yrs........2001 June Eric graduates and goes off to Cal Poly San Luis Obisbo..Nov. 12, 2001 my Mother takes her Last breath and I see her and my Dad Dancing in Heaven.........I still smell her perfume every so often....2007 Katie Graduates High School and Eric graduates College 2 days apart.....whew.........Alex has struggles but I Never give up on Him............Today he is clean of the Worst Drug ever HEROIN.......I am very Proud of him and I know God won't forget all the plans he's made for him.....He's not finished with him Yet.........♥♥♥ NOW TODAY I AM PREPARING TO GIVE A KIDNEY AND HOW MANY CAN SAY THEY SAVED A LIFE..............But This is Right up there with the Birth of my Children ...........Thank You Juliana for being apart of one of The best things in my LIFE SO FAR♥♥♥♥♥♥♥♥♥♥♥♥♥
Saturday, October 2, 2010
What's ahead...........A new Beginning
Today I am looking at Juliana's and my Surgery as a New Beginning. For me It has brought me to appreciate All the Dr.s and Nurse's we have in the World. It is amazing That one person can Give an important Organ Like a Kidney to Another Human being and the body adjusts to one kidney and it becomes bigger and better than two little Kidneys, It becomes a Super Kidney~......... I hope I can really touch someone with my experience. And if that person has the desire to be a Donor they will become one. I can't explain the feeling, but I can tell you it is a Joyous. I want to get more people interested in Kidney Donation....Thousands and Thousands of people die each year because they were on a Kidney Transplant List and and for some reason the right person didn't come forward to HELP....Most people are on the list up to 11 years before they hopefully get a match....Surgeons have come along way on Kidney transplants and No longer is it invasive with a lot of cutting and entering through the back. It is now laparoscopic usually on your left side with 3 small incisions and recovery is pretty fast 2 to 6 weeks........Wow.....Absolutly AMAZING..........After my Surgery I will give you a day by day report on how I feel..............My next appointment is my Pre-op on Tuesday Oct. 12..........I got a little freaked out when Juliana told me she had to give 24 vials of blood for her pre-op appointment.........OMGosh will I too..........It's okay bring it on and than Give me lots of orange juice...heheheheh.........Goodbye till Tomorrow........:))
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